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Living With FH

If you are living with familial hypercholesterolemia, hearing advice from others who have the condition, and sharing stories and advice can help.

In these videos, people living with FH talk about the importance of:

Knowing your family history of heart disease
Advocating for yourself
Finding a health care team and treatment plan that work for you

Patient Voices

Patient Voices: Family Testing for Very High Cholesterol

Living With FH: Salima has familial hypercholesterolemia (FH) and is living with very high levels of LDL cholesterol. Over time, FH can lead to heart attacks or strokes early in life. Passed down in families, the condition happens when there is a change in one of several genes. Because Salima has FH, her three sons are getting tested to see if they carry the gene too.
Patient Voices: Learning About Treatments

Living With FH: Salima is living with very high LDL cholesterol, known as the “bad” cholesterol. Her LDL cholesterol has been over 400 mg/dL at times. This is due to a genetic condition called familial hypercholesterolemia (FH). She talks about the power of advocating for yourself and finding a team and treatment plan that work for you.
Patient Voices: When High LDL Cholesterol Runs in Your Family

Living With FH: Salima is living with HoFH, a severe type of familial hypercholesterolemia (FH), that leads to dangerously high levels of LDL cholesterol even in childhood. Without treatment, HoFH often results in heart blockages, heart attacks and strokes early in life. Salima’s sister, brother and father all died early from heart attacks.
Patient Voices: On Making Healthy Choices and Knowing Your Family History

Living With FH: Matt is living with high cholesterol because of an inherited condition called familial hypercholesterolemia, or FH. He talks about understanding the power of lifestyle changes together with medications and knowing your family history.

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Last Edited 02/08/2023

News

2021 Guideline for Coronary Artery Revascularization

Featured Tools

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High Cholesterol

Patient Voices: Family Testing for Very High Cholesterol

Familial Hypercholesterolemia

Patient Voices: Learning About Treatments

Familial Hypercholesterolemia

Patient Voices: When High LDL Cholesterol Runs in Your Family

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FH: Homozygous Familial Hypercholesterolemia

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